Before I Die- Medical Care And Personal Choices
"In an effort to generate a national dialogue about dying in America and to explore the profoundly personal decisions that all of us must inevitably confront, this one-hour special is presented by Fred Friendly Seminars and Thirteen/WNET in New York, with funding from the Robert Wood Johnson Foundation."
Canadian Caregiver Coalition
"The Canadian Caregiver Coalition is a bilingual alliance composed of individuals, groups, and organizations. The mission is to come together with a unified voice, to influence policy, and to promote awareness and action to address the needs of caregivers of all ages across Canada."
Canadian Virtual Hospice
"A Network of Information and Support - The Canadian Virtual Hospice is an interactive network for Canadians dealing with life-threatening illness and loss."
Caregiver.com
Web site of the Caregiver Media Group, which includes topic specific newsletters, online discussion lists, back issue articles of Today's Caregiver Magazine, chat rooms and an online store.
Caring Connections
"Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation."
Compassion Books
"Over 400 resources to help children and adults through serious illness, death, loss, grief and bereavement. Reviewed and selected by knowledgeable professionals."
Finding Our Way - Living with Dying in America
"The Finding Our Way national public education initiative is focused on bringing practical information to the American public regarding end of life and its surrounding issues."
Get Palliative Care
Valuable information for patients and families coping with serious, complex illness including a palliative care Provider Directory, a definition and detailed description of what palliative care is, direct links to palliative care-related organizations and more.
Hospice Net
"For patients and families facing life-threatening illness..."
National Alliance for Caregiving
"We are dedicated to providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregiving"
- National Association for the Terminally Ill
"We, at the National Association for the Terminally Ill, give financial assistance to the children and families of those suffering from a terminal illness whose life expectancy is two (2) years or less. We help with day-to-day living expenses such as: rent or mortgage, groceries, electric, car payments, insurance payments, etc. We evaluate the need of each family on a case-by-case basis.
Our goal at the National Association for the Terminally Ill is to help all families regain financial independence."
National Family Caregivers Association (NFCA)
"NFCA is a grass roots organization created to educate, support, empower and speak up for the millions of Americans who care for chronically ill, aged or disabled loved ones."
On Our Own Terms- Moyers On Dying
"Two years in production, this four-part, six-hour series crosses the country from hospitals to hospices to homes to capture some of the most intimate stories ever filmed and the most candid conversations ever shared with a television audience"
- ACP-ASIM: Patient Education and Caring: End-of-Life (PEACE) Series
Pamphlets (pdf format) available on:
- Talking to Your Doctor
- When You Have Pain at the End-of-Life
- Making Medical Decisions for a Loved One at the End-of-Life
- American College of Physicians Home Care Guide for Advanced Cancer
"For family, friends, and hospice workers caring for persons with advanced cancer at home, when quality of life is the primary goal"
- Cancer Pain Treatment Guidelines for Patients Version II, August 2005 From the National Comprehensive Cancer Network
- CancerNet Supportive Care PDQs
From the National Cancer Institute, a broad selection of on-line pamphlets for patient/family regarding supportive care in cancer.
- Cancer-Pain.org
" Connect to the latest and most accurate information on state-of-the-art management of cancer pain for patients, caregivers and healthcare professionals."
- CancerSymptoms.org
"Welcome to the Oncology Nursing Society's CancerSymptoms.org website! This website is designed for patients and caregivers to provide information on learning about and managing each of six common cancer treatment symptoms: fatigue, anorexia, pain, depression, neutropenia, and cognitive dysfunction."
- Hospice of the Florida Suncoast - Caregiver Resources
"Are you a caregiver? Do you provide support or care for a family member, friend or community? More than one in four Americans is a caregiver - whether they see themselves in that role or not. The resources here were designed to help you."
- Pain Control: A Guide for People with Cancer and Their Families From the National Cancer Institute
"This booklet will help you learn about pain control for people with cancer. You will find out how to work with your doctors, nurses, and pharmacists to find the best method to control your pain; about different types of pain medications and nondrug methods of controlling pain; how to take your medicines safely; and how to talk with your doctors and nurses about your pain and how well the treatment is working for you."
Cancerbackup
NCI Cancer Topics