Specific Diseases / Populations / Interest Groups

• ALS Association (ALSA)
  
  "The ALS Association (ALSA) is the only national not-for-profit voluntary health organization dedicated solely to the fight against amyotrophic lateral sclerosis (often called Lou Gehrig's disease). The mission of The ALS Association is to find a cure for and improve living with ALS."
• ALS Assoc. Links Page (quite comprehensive)
• ALS Society of Canada
  
  "The ALS Society of Canada endeavors to provide relevant and current information about ALS in an easy to understand format, much of it may be downloaded from this site."
• American Academy of Neurology - Guideline on the Care of the Patient with ALS  
• Journal of Neurology - Online Abstracts of Articles on Palliative Care in ALS
  • Discontinuation of mechanical ventilation in patients with amyotrophic lateral sclerosis.  Borasio GD, Voltz R.; J Neurol. 1998 Nov;245(11):717-22.
  • Symptomatic treatment of respiratory and nutritional failure in amyotrophic lateral sclerosis  Hardiman O.; J Neurol. 2000 Nov;247(4):245-51.
  • The course of the terminal phase in patients with amyotrophic lateral sclerosis  Neudert C., Oliver D., Wasner M., Borasio GD; J Neurol. 2001 Nov;248(7):612-16.
  • Volume 244, Supplement 4 - Focus on Palliative Care; Includes:
    • Palliative therapy in the terminal stage of neurological disease  Voltz R., Borasio GD; J Neurol 244 (1997) 14, S2-S10
    • Palliative care in amyotrophic lateral sclerosis  Borasio GD, Voltz R.; J Neurol 244 (1997) 14, S11-S17
    • Quality of life issues in palliative medicine  O'Boyle C.A., Waldron D.; J Neurol 244 (1997) 14, S18-S25
• Motor Neurone Disease (MND) Association

•   Palliative Dementia Care Resources
  
  A comprehensive resource for health care professionals and the public, addressing palliative and end-of-life issues in advanced dementia
• Pain Management for Patients With Late-Stage Dementia

• Palliative care for patients with non-malignant end stage respiratory disease - Editorial from Thorax Online (requires registration for access; no cost)  

• Gibbs LME, Addington-Hall J  Dying from heart failure: lessons from palliative care  BMJ 1998; 317: 961-962

•   US Dept. of Health And Human Services
  • A Clinical Guide to Supportive and Palliative Care for HIV/AIDS
  • Palliative Care in Resource-Constrained Settings for People Living with HIV/AIDS and Other Life-Threatening Illnesses
  • U.S. Dept. of Health and Human Services - A Guide to the Clinical Care of Women with HIV - 2005
    
    "This guide addresses the health care needs unique to women with HIV. It targets clinicians who provide primary care to women as well as those seeking an understanding of how to take care of women with HIV/AIDS."
• A Resource Guide for Providing Palliative Care Services Through the Ryan White CARE Act
• AIDS.ORG
•   American Academy of Pediatrics - Planning for Children Whose Parents Are Dying of HIV/AIDS (February 1999)
• Canadian AIDS Society / Socéité canadienne du sida
• CDC- Global AIDS Program: Strategies  
  
  From the Centers for Disease Control and Prevention
•   International AIDS Society
• Joint United Nations Programme on HIV/AIDS (UNAIDS)
  • Palliative Care

• Palliative Care for people with MS - from the United Kingdom Multiple Sclerosis Society

• Last Passages - Enhancing end-of-life care for persons with developmental disabilities

•   Guide to End-of-Life Care for Seniors  
  
  From the Regional Geriatric Program of Toronto
•   Palliative care Info-sheet for seniors
•   Palliative Care Australia - Guidelines for a Palliative Approach in Residential Aged Care
  
  "The Australian Government Department of Health and Ageing, as part of the National Palliative Care Program, launched the Guidelines for a Palliative Approach in Residential Aged Care in 2004. Palliative Care Australia (PCA) has been engaged by the Department to coordinate a project to create a strategy and resources enabling residential aged care facility (RACF) staff to be introduced to the Guidelines."

•   The National Prison Hospice Association
  
  "The National Prison Hospice Association promotes hospice care for terminally ill prisoners. Our purpose is to assist corrections and hospice professionals in their continuing efforts to develop high quality patient care procedures and management programs."